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Data4SCD

Peer2Peer Navigators

Individuals with sickle cell disease often look to their community organization or warrior peers for information. Why not leverage that trust by creating peer 2 peer/ community navigators to assist newly transitioned or lost to follow up (LTFU) patients to those with proven healthcare utilization and navigation skills. These peer navigators are not without their own disease complexities, but rather, have learned to utilize the healthcare system to improve their care and quality of life. 

Data sets can include utilization patterns such as:

* Time to 1st appointment

* Time between clinic appts

* ED visits/ admission data (this dataset should not be used to judge or create bias, but rather to better understand barriers and psychosocial factors impacting utilization) 


Rae Blaylark

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