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Data4SCD

Combating Sickle Cell Disease, A Concept Note

There are mistrust and disconnect between the SCD patients and specialized SCD healthcare experts. Uncertified reviews cause misinformation and frustrations. Patients do not wish to disclose their condition to their friends, family, and employers in fear of losing their dignity and freedom. Patients do not know what resources are available to ameliorate their symptoms and to plan for their future. This concept note describes the idea of a web base platform where users can write validated reviews by submitting the receipts. This website also include toolkits and road maps that are streamlined for the patients, family, schools, and employers, and a medical record system where patients can track their medication history and daily pain management. This way, patients can reduce the dependence on medications.

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Type of Solution

Policy/White Paper

Jen Kwack

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